Living with Pain - A Long COVID Patient Perspective and How Clinicians Can Help
In this webinar, the speakers will look at the lived experience of people who have contracted COVID-19 and how they have had to struggled with the issues of pain alongside the other Long COVID symptoms. Musculoskeletal aches and pains are the third most common side effect of long COVID and understanding the patient perspective can allow for tailoring of therapy according to their needs rather than reaching out to usual medications. There will be two patient perspectives - one from a patient with chronic pain exacerbated due to Long COVID and the other will be the start of de novo pain due to long COVID. Do they differ and if so how? What are the needs of the patient, which can define treatment paths forward? How should pain and long COVID services evolve then to deal with this potential problem? We will then hear from two clinicians who have helped set up one of the initial 43 national clinics for Long COVID in the UK and see how they have designed a system that is responsive to patient needs and the opportunities and challenges of designing a service for a condition where the knowledge is still evolving and forming.
Introduce the issue of chronic pain both as a consequence of Long COVID and also its exacerbation by contracting acute COVID.
Participants will hear from patients struggling with Long COVID symptoms (how they have managed and the supports they received and their needs during this difficult time amidst multiple waves of acute COVID and lockdowns).
The role of coproduction and its utility in designing new innovative ways of providing support.
Living with Pain – a Long COVID Patient Perspective
This talk will give a perspective on the relatively new experience of living with pain. Musculoskeletal and joint pain has been a predominant symptom of the speaker's Long COVID journey. It has gone from being a constant presence to having the occasional day pain free. This presentation will describe how others have been self-managing the pain while not being under the care of one of England's Long COVID clinics or any other pain clinic.
Upon completion, participants will be able to have some understanding of a patient's experience of chronic pain
Upon completion, participants will gain knowledge of some of the methods used in this individual's self-management of that pain.
Upon completion, participants will gain understanding of how this is learnt management on an individual level and be able to work with those experiencing chronic pain
There have been a wide array of symptoms reported by long-COVID patients with pain and fatigue showing as dominant features. This presentation will aim to explore how patients have clinically been presenting in our long-COVID clinic with their pain and fatigue. The importance of managing symptoms, rather than looking at the treatment of them will be discussed, as well as exploring the tools recommended to help support patients with these challenges. Attendees will learn of the approach of focusing on the importance of a biopsychosocial approach within a multidisciplinary setting. Additionally, patient case studies will be discussed to demonstrate the broad range of presentation and management strategies within this patient group.
Managing the Cocktail of Pre-Existing Chronic Pain with Long COVID Symptoms and the Effect of Loss of Support from NHS
The discussion will center around the experience of living with chronic pain, the additional influence of having COVID-19 in March 2020 and now living with Long COVID too. The difference between previous pain and dysfunction and the added factors of Long COVID will be discussed, including what it is like to try and access help from the NHS during the pandemic, not just for the previous conditions, but also COVID related assistance. The lived experience of Accident and Emergency with 3 of 4 signs of viral sepsis, the treatment there, and how it has influenced onward treatment will be explored as it has had a huge impact on the trajectory of recovery. The various interventions tried will be deliberated as Long COVID and the challenges with its recognition add increasing levels of complexity to an already difficult situation. Medical attitudes and language and what can be improved so that patients are appropriately managed on an interpersonal level will also be covered as the frustrations and stresses caused by a lack of effective listening also prevent access to effective treatments.
Pain in Long COVID Patients – a Clinician Perspective
While research was being presented as early as May 2020 that chronic pain would get worse with COVID-19, it became very apparent that COVID-19 itself could cause chronic pain for a variety of reasons, all of which are context dependent and biopsychosocial. A multitude of reasons exist for the occurrence of new onset pain that can often be resistant to mainstream therapies and calls for a more integrated, patient-centered and trauma informed way of working with the Long COVID patient. With co-existing fatigue and new digital technologies, it is important to harness the benefits that they bring while mitigating risks and then find a way to bring community support into a Long COVID service. This presentation will be aiming to highlight what can be done when systems can work with patients to coproduce new ways of support.
Upon completion, the participant will be able to define and understand the prevalence of Long COVID (Post COVID-19 Syndrome)
Upon completion, the participant will understand the multifactorial causes of chronic pain in Longcovid
Upon completion, the participant will understand and be able to describe the requirements for setting up a MDT Long COVID service to cater to the needs of Long COVID and pain patients