Editor’s note: This seminar is the latest event in a series of seminars launched in May 2020 to help keep the pain research community connected during the COVID-19 pandemic and to provide all members of our community with virtual educational opportunities. The seminar series is supported by The MAYDAY Fund and the Center for Advanced Pain Studies at the University of Texas at Dallas, US.
The IASP Pain Research Forum partnered with the IASP Pain Registries Special Interest Group for a seminar on pain registry methodology. The seminar took place on Thursday, May 27, 2021, 11:00 a.m. to 12:15 p.m. Eastern Daylight Time (US)/4-5:15 p.m. BST/5-6:15 p.m. CEST. A Q&A session followed the presentations.
Speakers include:
- Sean Chetty, MBChB, PhD, Stellenbosch University, Cape Town, South Africa: Working Towards a Consented Definition of a Pain Registry
- Gary Macfarlane, MBChB, PhD, University of Aberdeen, Scotland: Overcoming Issues Related to Analysis of Big Observational Datasets
- Bruce Biccard, MBChB, PhD, Groote Schuur Hospital and University of Cape Town, South Africa: Challenges Related to Developing Registries in LMICs (Low to Middle Income Countries)
- Carolyn Arnold, MBBS, Monash University, Melbourne, Australia: Methodological considerations for data collection within a chronic pain clinic for quality improvement and research.
- Cathy Price, MB BCH, DCH, Solent NHS Trust, Southampton UK (moderator)
A recording of the event is now available on the IASP Pain Education Resource Center here.
Here is an abstract for the event
At the end of the Pain Registries SIG’s first webinar in October 2020, people listed priorities for the SIG to work on. Questions related to registry methodology were high on the list, as well as the question of how to introduce registries to middle- and possibly low-income countries. As a result, this second SIG webinar will focus on both of these topics. Three of the talks will address topics related to methodology, and one will address the question of how to set up registries in low- to middle-income countries.
Questions you might consider in preparation for the talk related to consenting on a definition of a Pain Registry:
- Which definition for a pain registry do you use in your own research?
- Is this definition sufficient for your needs OR do you think there is a need for a different/updated/consented definition?
- Members of the SIG suggested that we should work toward preparing a consented definition for a Pain Registry. Do you agree that this is a priority for the SIG? Would you like to take part in this process?
About the presenters
Bruce Biccard, MBChB, PhD, is an anesthesiologist, and Professor and Second Chair at Groote Schuur Hospital and University of Cape Town, South Africa. Bruce, together with H.-L Kluyts, has recently published a paper on “The role of peri-operative registries in improving the quality of care in low-resource environments.”
Sean Chetty, MD, PhD, is Associate Professor and Executive Head of Department at the Department of Anesthesiology and Critical Care, Faculty of Medicine and Health Sciences, at the Stellenbosch University, Cape Town, South Africa.
Gary Macfarlane, MBChB, PhD, is a Professor, Clinical Chair in Epidemiology and Dean of Interdisciplinary Research and Research Impact at the University of Aberdeen, Scotland.
Carolyn Arnold, MBBS, FFPMANZCA, is an Associate Professor at Monash University in Melbourne, Australia.
About the moderator
Cathy Price, MB BCH, DCH, is a Consultant in Pain Medicine for Solent NHS Trust, Southampton UK. She is also a Clinical Director of Primary Care and Musculoskeletal and Allied Services for Solent NHS Trust. She is currently interim chair of the Pain Registry SIG.
Join the conversation about the seminar on Twitter @PainResForum #PRFSeminar
We thank The MAYDAY Fund and the Center for Advanced Pain Studies at the University of Texas at Dallas, US, for their support of the PRF seminar series.
