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An international study to explore the feasibility of collecting standardised outcome data for Complex Regional Pain Syndrome: recommendations for an international clinical research registry.
Authors
Grieve S, Brunner F, Cabral DF, Connett R, Hirata H, Iwasaki N, Nakagawa Y, Sagir A, Sousa G, Vatine JJ, Vaughan-Spickers N, Xu J, Buckle L, McCabe CAbstract
Complex Regional Pain Syndrome (CRPS) is a persistent pain condition with low prevalence. Multi-centre collaborative research is needed to attain sufficient sample sizes for meaningful studies. This international observational study: (1) tested the feasibility and acceptability of collecting outcome data using an agreed core measurement set (2) tested and refined an electronic data management system to collect and manage the data.