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Papers of the Week

Papers: 27 Aug 2022 - 2 Sep 2022


Human Studies

2022 Aug 30

J Med Internet Res



Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial.


Lalloo C, Nishat F, Zempsky W, Bakshi N, Badawy S, Ko Y J, Dampier C, Stinson J, Palermo TM
J Med Internet Res. 2022 Aug 30; 24(8):e40096.
PMID: 36040789.


Sickle cell disease (SCD) is characterized by severe acute pain episodes as well as risk for chronic pain. Digital delivery of SCD pain self-management support may enhance pain self-management skills and accessibility for youth. However, little is known about how youth with SCD and their caregivers engage with digital health programs. iCanCope with pain is a digital pain self-management platform adapted for youth with SCD and caregivers through a user-centered design approach. The program was delivered via a website (separate versions for youth and caregiver) and mobile app (youth only).