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Papers of the Week


2021


Frontline Gastroenterol


12


5

Patient ownership of primary biliary cholangitis long-term management.

Authors

Leighton J, Thain C, Mitchell-Thain R, Dyson JK, Jones DE
Frontline Gastroenterol. 2021; 12(5):370-373.
PMID: 35401960.

Abstract

Patient ownership of disease is vital in rare diseases like primary biliary cholangitis (PBC). This survey of UK members of the PBC foundation aimed to assess patients' perception of their disease management, focusing on key biomarkers and problematic symptoms.