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Papers of the Week
Qualitative Assessment of Health-Related Quality of Life Impacts Associated with Sickle Cell Disease in the United States and United Kingdom.
Authors
Drahos J, Boateng-Kuffour A, Calvert M, Valentine A, Mason A, Li N, Pakbaz Z, Shah F, Martin APAbstract
Individuals living with sickle cell disease (SCD) commonly report impaired health-related quality of life (HRQoL). However, impacts of SCD on HRQoL and the unmet needs of SCD treatment/management are under-researched. This study characterized the impact of SCD on HRQoL and identified the unmet needs of individuals with SCD.