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Papers of the Week

Papers: 25 May 2024 - 31 May 2024

2024 May 23

J Pain


Co-design and evaluation of pain science messages on social media with adolescents with a history of chronic pain.


Leake HB, Heathcote LC, Ferencz N, Birnie KA, Davis A, Karran EL, Starr TS, Thorpe M, Lorimer Moseley G


Pain science education is an important component of paediatric pain care; however, access to services is limited. To disseminate pain science concepts on social media, we partnered with adolescents with chronic pain to co-design content. We engaged seven adolescent co-designers (aged 13-18 years) with lived experience of chronic pain to take part in four co-design workshops. Co-designers actively contributed to the social media campaign by selecting the social media platform, dictating design principles, generating metaphors and language, and recommending changes of mock designs. Co-designers suggested expanding the intended audience of the campaign to include people without a lived experience of chronic pain, such as friends, family, and teachers, alongside targeting adolescents with chronic pain. We published 30 posts and 102 stories over an 18-week period on Instagram, that reached over 40,000 individuals. We evaluated co-designers experience, where they reported having clear communication and necessary supports and information to participate; were able to share their ideas and felt they were heard; and felt their input was making a difference. The outputs of this campaign could be useful to guide the tailoring of other pain science education content delivered by clinicians as part of clinical care. Future testing of the content generated in this co-design process could evaluate if it leads to meaningful changes to the lives of people with chronic pain. PERSPECTIVE: Researchers partnered with adolescents with chronic pain to co-design content for a social media campaign on pain science education. Adolescent co-designers actively shaped the campaign direction, broadening its scope to reach diverse audiences. Our Instagram initiative reached over 40,000 individuals, indicating the potential for innovative educational approaches.