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Papers of the Week

2022 Nov 28


Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.


Bogetz JF, Johnston EE, Thienprayoon R, Patneaude A, Ananth P, Rosenberg AR
Pediatrics. 2022 Nov 28.
PMID: 36437228.


Children with complex chronic conditions (CCCs) and their families deserve high-quality pediatric palliative care (PPC) throughout their illness trajectory, including at end of life (EOL). Standard EOL quality measures (QM) have only recently been proposed, require surveys and/or manual chart review, and focus on children with cancer. Therefore, we aimed to develop expert-endorsed, hospital-based, primary PPC quality measures for EOL care for all children with CCCs that could be automatically abstracted from the electronic health record (EHR).