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Papers of the Week


2022 Oct 20


Haemophilia

The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies.

Authors

Rambod M, Pasyar N, Irannejad Parizi F, Edraki M, Khair K, von Mackensen S
Haemophilia. 2022 Oct 20.
PMID: 36264198.

Abstract

The use of virtual interventions is of interest to patients with chronic disease and healthcare professionals. This study aimed to determine the effect of virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies. Moreover, the effect of this intervention on children's acute pain and bleeds was assessed.