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gy2022-1-3
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Papers of the Week

Home / Publications / Pain Research Forum / Papers of the Week / A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa.

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2022 Aug 13


Orphanet J Rare Dis


http://www.ncbi.nlm.nih.gov/pubmed/35964087?dopt=Abstract


17


1

A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa.

Authors

A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa.
Paller AS, Pope E, Rudin D, Malyala A, Ramsdell D, Johnson R, Landy H, Murrell DF
Orphanet J Rare Dis. 2022 Aug 13; 17(1):314.
PMID: 35964087.

Abstract

Standardized assessments for dystrophic epidermolysis bullosa (DEB) are needed. This prospective, multicenter, 4-week, observational study was designed to evaluate DEB assessments for suitability as clinical trial endpoints.
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