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Papers of the Week

2022 Jan 15

J Patient Rep Outcomes



The endometriosis daily diary: qualitative research to explore the patient experience of endometriosis and inform the development of a patient-reported outcome (PRO) for endometriosis-related pain.


Guan Y, Nguyen AM, Wratten S, Randhawa S, Weaver J, Arbelaez F, Fauconnier A, Panter C
J Patient Rep Outcomes. 2022 Jan 15; 6(1):5.
PMID: 35032232.


Endometriosis is a chronic disorder of the female reproductive system characterized by debilitating symptoms, particularly endometriosis-related pain (ERP). Patient-reported outcome (PRO) measures of symptoms and impacts are required to assess disease severity in ERP clinical studies and clinical practice. A content-valid instrument was developed by modifying the Dysmenorrhea Daily Diary (DysDD) to form the Endometriosis Daily Diary (EDD), an electronic PRO administered via handheld device.