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Papers of the Week

2019 May




The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study).


Khair K, Klukowska A, Myrin Westesson L, Kavakli K, Escuriola C, Uitslager N, Santoro C, Holland M, von Mackensen S
Haemophilia. 2019 May; 25(3):416-423.
PMID: 30925018.


Treatment burden for the people with haemophilia has been documented, as has the burden of caring for a child with a common chronic disease such as asthma or diabetes. However, there remains a paucity of data about caregiver burden in haemophilia.