Pain Registries Mission and Vision
The Pain Registries Special Interest Group aims to:
- Provide guidance on best practices in developing pain registries.
- Represent pain registries within IASP.
- Support collaborators from medical centers worldwide to join or initiate pain registries for procedures, therapies, or services.
- Initiate and advance registry-related projects.
- Guide funding to support the further expansion and development of registries.
- Encourage collaborators to present their findings at IASP meetings.
- Promote registry-based trials.
- Encourage existing medical registries (unrelated to pain specifically) to include some “agreed” standard pain outcomes as a minimum.
Pain Registries Resources:
Research Articles on Pain Registries
- Accuracy of Self-reported Prescribed Analgesic Medication Use Linkage Between the Quebec Pain Registry and the Quebec Administrative Prescription Claims Database
Lacasse A, Ware M, Bourgault P, et al Clin J Pain Volume 32, Number 2, February 2016 - As if one pain problem was not enough: prevalence and patterns of coexisting chronic pain conditions and their impact on treatment outcomes
Page M, Fortier M, Ware M, Choiniere M Journal of Pain Research 2018:11 - Development and Implementation of a Registry of Patients Attending Multidisciplinary Pain Treatment Clinics: The Quebec Pain Registry
Choinière M, Ware MA, Pagé MG, et al Pain Research and Management Volume 2017 - Effectiveness of long-term opioid therapy among chronic non-cancer pain patients attending multidisciplinary pain treatment clinics: A Quebec Pain Registry Study
Saidi H, Page M, Boulanger A, et al Canadian Journal of Pain, 2:1, 113-124 - Establishment of the Australasian electronic Persistent Pain Outcomes Collaboration
Tardif H, Arnold C, Hayes C, Eagar K Pain Medicine, Volume 18, Issue 6, June 2017, Pages 1007–1018 - Expectations predict chronic pain treatment outcome
Cormiera S, Lavigneb G, Choiniere M, et al PAIN. February 2016 Volume 157 Number 2 - Implementation of Patient‐Reported Outcomes (PROMs) from specialist pain clinics in England and Wales: Experience from a nationwide study
Price CM, C. de C. Williams A, Smith BH, Bottle A Eur J Pain. 2019; 23: 1368– 1377 - Is the Quebec provincial administrative database a valid source for research on chronic non-cancer pain?
Lacasse A, Ware M, Dorais M, et al pharmacoepidemiology and drug safety 2015; 24: 980–990 - Normative data for common pain measures in chronic pain clinic populations: closing a gap for clinicians and researchers
Nicholas MK, Costa DS, Blanchard M, Tardif H, Asghari A, Blyth FM PAIN. 2019 May;160(5):1156-1165 - Pain registries and similar data collections: A systematic review
Freytag A, Scriba B, Kaiser U, Meissner W Schmerz. 2016 Dec;30(6):568-575 - Pain-related functional interference in patients with chronic neuropathic postsurgical pain: an analysis of registry data
Stamer UM, Ehrler M, Lehmann T, Meissner W, Fletcher D PAIN 160(8):p 1856-1865, August 2019 - Predicting treatment outcomes of pain patients attending tertiary multidisciplinary pain treatment centers: A pain trajectory approach
Page M, Escobar M, Ware M, et al Canadian Journal of Pain, 1:1, 61-74 - Pregabalin for chronic pain: does one medication fit all?
Giladi H, Choinière M, Fitzcharles M, et al Current Medical Research and Opinion, 31:7, 1403-1411 - Risk of Opioid Abuse and Biopsychosocial Characteristics Associated With This Risk Among Chronic Pain Patients Attending a Multidisciplinary Pain Treatment Facility
Page M, Saidi H, Ware M, et al Clin J Pain Volume 32, Number 10, October 2016 - The Paediatric electronic Persistent Pain Outcomes Collaboration (PaedePPOC): establishment of a binational system for benchmarking children's persistent pain services
Lord SM, Tardif HP, Kepreotes EA, Blanchard M, Eagar K Pain. 2019 Jul;160(7):1572-1585 - Finding the vulnerable postoperative population: A two‐step cluster analysis of the PAIN‐OUT registry
Polanco-García M, Granero R, Gallart L, García-Lopez J, Montes A European Journal of Pain, 26, 1732– 1745
Other Articles of Relevance
- Australian Commission on Safety and Quality in Health Care: Framework for Australian clinical quality registries
ACSQHC, March 2014 - Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review
Hoque DME, Kumari V, Hoque M, Ruseckaite R, Romero L, Evans SM PLoS One. 2017 Sep 8;12(9):e0183667