Resources for Living with Pain

This is a listing of resources relevant to those living with pain. Note: IASP does not offer patient referrals, and links should not be construed as endorsement. IASP is not responsible for information contained on 3rd-party sites.


Organizations


American Chronic Pain Association

The mission of the ACPA is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain, and to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
http://www.theacpa.org

Australian Pain Management Association
APMA aims to offer pain-management options and information for people with persistent pain.
http://www.painmanagement.org.au/

Canadian Pain Coalition
The Canadian Pain Coalition is a partnership of pain consumer groups, health professionals who care for people in pain, and scientists studying better ways of treating pain.
http://www.canadianpaincoalition.ca/

Chronic Pain Australia
Organization dedicated to reducing the unnecessary suffering and isolation of people with chronic pain in Australia.
http://www.chronicpainaustralia.org.au/

Inspire Santé
Inspire Santé is a nonprofit that provides advocacy and education for pelvic pain disorders.
http://inspiresante.org/ 

Pain BC
Pain BC is a registered charity that is transforming the way chronic pain is understood and treated. 
https://www.painbc.ca/ 

Patient Advocate Foundation
The Patient Advocate Foundation aims to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
http://www.patientadvocate.org

Pelvic Pain Support Network
The Pelvic Pain Support Network is a patient led organisation with a board of trustees who are all patients or carers. We are a registered charity.
https://www.pelvicpain.org.uk/ 

U.S. Pain Foundation
The mission of U.S. Pain Foundation is to empower, educate, connect, and advocate for people living with chronic conditions that cause pain.
https://uspainfoundation.org/ 


Publications and Electronic Resources

A Path Forward
The mission of A Path Forward is to raise awareness about persistent pain and to help people find effective ways to help manage their pain and live better lives.
https://www.facebook.com/APathFWD/ 

Adelaide Pain Support Network
The Adelaide Pain Support Network supports people with persistent pain. It is supported by the Adelaide Primary Health Network.
https://www.facebook.com/adelaide.painsupport/ 

eCentreClinic- Pain Course (Macquarie University)
The Pain Course is a FREE, online and internet-delivered pain management program designed to provide good information about chronic pain and to teach practical skills for managing the impact of pain on day-to-day activities and emotional wellbeing.
https://ecentreclinic.org/?q=PainCourse

eMedicine Health "Pain Management Center"
Collection of short articles about various pain related topics.
http://www.emedicinehealth.com/pain-management/center.htm

The Explain Pain Handbook: Protectometer
The Explain Pain Handbook brings the latest in pain science into an easily accessible book for patients and introduces the ‘Protectometer’ - a ground breaking pain treatment tool.
http://www.protectometer.com/ 

Live Move Be Yoga
Tami Link discusses the health enhancing benefits of mindful movement, yoga and Pilates.
https://livemovebeyoga.com/ 

Live Plan Be
Learn about the science behind chronic pain. Keep track of your symptoms and their impacts. Develop a plan for better pain management and quality of life. Connect with a like-minded community of others who live with pain.
https://www.liveplanbe.ca/ 

My Cuppa Jo
My Cuppa Jo is Joletta Belton's blog about how pain science education, movement, nature, loving and being loved, mindfulness, effective communication, and being more creative have helped her to change her pain and how she thinks these things can help others, too.
http://www.mycuppajo.com/ 

The Mystery of Chronic Pain
We think of pain as a symptom, but there are cases where the nervous system develops feedback loops and pain becomes a terrifying disease in itself. Starting with the story of a girl whose sprained wrist turned into a nightmare, Elliot Krane talks about the complex mystery of chronic pain, and reviews the facts we're just learning about how it works and how to treat it.
https://www.ted.com/talks/elliot_krane_the_mystery_of_chronic_pain?language=en 

NHS Choices "Living with Pain"
Information site by the UK's National Health Service.
http://www.nhs.uk/Livewell/Pain/Pages/Painhome.aspx

Pain Care for Life
For those living with chronic pain, the Pain Care for Life program offers guided practices that can help you manage your pain, move with more ease and get back to life.
https://lifeisnow.ca/ 

Pain Chats
Understanding pain, and how to treat it, is your first step to living well again. Discover the advice that helps people recover from long-term pain.
https://painchats.com/ 

Pain-Ed.com
The mission of pain-ed.com is to inform both the public and health care practitioners about the latest pain research and to dispel common myths about pain and provide hope for change.
http://www.pain-ed.com/ 

painHEALTH
Clinically supported information, tips, support and personal stories to help manage musculoskeletal pain.
https://painhealth.csse.uwa.edu.au/ 

Pain Management Network
This website is designed to help you gain a better understanding of your pain. The site contains information to enable you to develop skills and knowledge in the self management of your pain in partnership with your healthcare providers.
https://www.aci.health.nsw.gov.au/chronic-pain 

Pain Revolution
Pain Revolution is on a mission to help all Australians access community-based pain education through the Local Pain Educator Program. Pain Revolution also holds a virtual Lived Experience Community of Practice and provides online resources for those living with pain. 
https://www.painrevolution.org/ 

Pain Toolkit
The Pain Toolkit is a simple information booklet that could provide you with some handy tips and skills to support you along the way to managing your pain.
http://www.paintoolkit.org/

PainTrain
PainTrain's mission is to enable chronic pain patients to summarise information about their condition and to easily share it with whoever they choose including health care practitioners, carers, family and friends.
https://pain-train.com.au/ 

Pelvic Guru
The mission of Pelvic Guru is to provide information about pelvic health to a global community in order to improve access to skilled healthcare providers, education, and online resources while normalizing conversations and reducing shame and embarrassment for those who live with their own pelvic health issues.
https://pelvicguru.com/ 

Personalized Activated Care & Training
Personalized Activated Care Training (PACT) can help patients achieve long-­term healing of their pain condition before it becomes chronic and causes personal suffering, life interference, addiction, and disability. Personal toolkits for preventing chronic pain and addiction are available at www.preventingchronicpain.org.

People in Pain Network
People in Pain Network is a non-profit organization that promotes well-being for people living in persistent pain and those who care about them, by strengthening self-management programs, access to resources, and community support.
https://www.pipain.com/ 

PhysioYoga
PhysioYoga Therapy is an approach to rehabilitation that combines evidence informed Physical Therapy and yoga therapy, resulting in a holistic or biopsychosocial approach to your rehabilitation experience.
https://physioyoga.ca/ 

PubMed Health "How to read health news"
Brief article about how to critically examine health news in order to separate facts from hype.
http://www.ncbi.nlm.nih.gov/pubmedhealth/behindtheheadlines/how-to-read/

Retrain Pain
Retrain Pain was founded by three New York based physical therapists who teamed up to build an organization devoted to free online pain education.
https://www.retrainpain.org/ 

Tame the Beast
Starting with the incredible knowledge of the human pain system, the creators wanted to communicate hope and give people evidence-based direction to guide their recovery from pain.
https://www.tamethebeast.org/ 

This Way Up: Chronic Pain-Reboot
This is an online Chronic Pain Course developed in conjunction with the Department of Pain Medicine at St Vincent’s Hospital, Sydney for adults who have been experiencing chronic pain. The course takes a multidisciplinary approach to pain management and is based on the effective Cognitive Behavioural Therapy (CBT) model. In this course you will learn CBT skills to help better manage your chronic pain and improve your quality of life.
https://thiswayup.org.au/how-we-can-help/courses/chronic-pain/