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Papers of the Week

January 27, 2023

Respir Med Res



Ethnographic survey of patients and caregiver’s life journey in idiopathic pulmonary fibrosis.


Ahmed Léa, Bergot E, Prévot G, Cottin V
Respir Med Res. 2022 Oct 01; 83:100955.
PMID: 36634553.


Idiopathic pulmonary fibrosis (IPF) is a chronic, progressive lung disease associated with high mortality. The IPF journey affects patients' and caregivers' quality of life, this should be taken into account as an important parameter for a better disease management. An ethnographic study was conducted between December 2019 and January 2020 to explore social disease representations, patients' and cargivers' experiences in the disease journey and consequences in their daily life, to identify the means of actions permitting a quality of life (QoL) improvement.