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Papers of the Week


January 27, 2023


Respir Med Res


http://www.ncbi.nlm.nih.gov/pubmed/36634553?dopt=Abstract


83

Ethnographic survey of patients and caregiver’s life journey in idiopathic pulmonary fibrosis.

Authors

Ahmed Léa, Bergot E, Prévot G, Cottin V
Respir Med Res. 2022 Oct 01; 83:100955.
PMID: 36634553.

Abstract

Idiopathic pulmonary fibrosis (IPF) is a chronic, progressive lung disease associated with high mortality. The IPF journey affects patients' and caregivers' quality of life, this should be taken into account as an important parameter for a better disease management. An ethnographic study was conducted between December 2019 and January 2020 to explore social disease representations, patients' and cargivers' experiences in the disease journey and consequences in their daily life, to identify the means of actions permitting a quality of life (QoL) improvement.