Pain Registries

Aims and goals for Pain Registries SIG:

  • Provide guidance on best practice in developing pain registries
  • Represent pain registries within IASP.
  • Support collaborators from medical centers, worldwide, to join or initiate pain registries for procedures, therapies or services
  • Initiate and advance registry-related projects.
  • Guide on funding to support the further expansion and development of registries.
  • Encourage collaborators to present their findings at IASP meetings
  • Promote registry-based trials
  • Encourage existing medical registries (unrelated to pain specifically) to include some "agreed" standard pain outcomes as a minimum

Pain Registries in Australasia
Dr. Susie Lord

Clinical quality registries (CQRs) collect and analyse clinical performance data, and provide patients, clinicians and service planners with regular feedback on practice and outcomes.

By identifying variations in outcomes, registries allow for development of benchmarks and assessment of comparative performance at the clinic, regional, national, and international levels. Examining and learning from the practices of high-performing services, through a continuous quality improvement process, may lead to earlier identification and dissemination of best practices.

In 2012, the Australian and New Zealand pain management sector began a clinical quality registry named ePPOC (the electronic Persistent Pain Outcomes Collaboration) which has adults’ and children’s service arms—ePPOC1 and PaedePPOC2.

In parallel, the Australian Commission on Safety and Quality in Health Care developed a national framework to promote best practice design, development, operation and security of CQRs.3 Recently, the Australian government has moved toward CQR policy with its Draft National Clinical Quality Registry Strategy (2019-2029).4

This draft strategy articulates four government objectives:
1) partnering with patients in CQR development
2) assuring CQR quality by developing CQR standards and an accreditation scheme
3) maximising data utilisation through improved access and linkage
4) developing a sustainable funding model for national, prioritised CQRs

Chronic pain and ePPOC were absent from the draft CQR priority list, despite chronic pain being a driver for disease burden and cost in many of the prioritised chronic conditions. Continued advocacy may see this situation improve in the interests of the many people with chronic pain across both countries.


Upcoming Meetings: 

  • SIG Business Meeting
    28 June 2021 - [12:45 - 13:45]
    World Congress on Pain | Amsterdam, The Netherlands

Discussion Forum

Follow the steps below to access the Pain Registries SIG online discussion forum, Groupsite: 

  • Login into your IASP account
  • Click on "My Account"
  • Scroll down to "My Group Memberships"
  • Click on your listed SIG - "Pain Registries"


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Interim Officers 

Chair - Cathy Price 
Secretary - Ruth Zaslansky
Treasurer: Gary Macfarlane

Interim Committee Members (with special interests)
Pain in Children - Susie Lord
Perioperative Pain - Winifried Meissner
Special Interest (TBD) -  Sean Mackey
Chronic Pain - Manon Choiniere
Developing countries - TBD

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