Pain Registries
Aims and goals for Pain Registries SIG:
- Provide guidance on best practice in developing pain registries
- Represent pain registries within IASP.
- Support collaborators from medical centers, worldwide, to join or initiate pain registries for procedures, therapies or services
- Initiate and advance registry-related projects.
- Guide on funding to support the further expansion and development of registries.
- Encourage collaborators to present their findings at IASP meetings
- Promote registry-based trials
- Encourage existing medical registries (unrelated to pain specifically) to include some "agreed" standard pain outcomes as a minimum
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Meetings
Discussion Forum
Resources
SIG Meetings
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About SIGs
Upcoming Meetings:
- SIG Teleconference
20 October 2020 - [19:00 – 20:00 CET / 1:00 PM ET]
Zoom Call | https://us02web.zoom.us/meeting/register/tZEtdeCpqD4tGdFGLO8GWhnqNEenDk34AbY- - SIG Business Meeting
28 June 2021 - [12:45 - 13:45]
World Congress on Pain | Amsterdam, The Netherlands
Follow the steps below to access the Pain Registries SIG online discussion forum, Groupsite:
- Login into your IASP account
- Click on "My Account"
- Scroll down to "My Group Memberships"
- Click on your listed SIG - "Pain Registries"
Recent research articles on pain registries recently published
- Accuracy of Self-reported Prescribed Analgesic Medication Use Linkage Between the Quebec Pain Registry and the Quebec Administrative Prescription Claims Database | Lacasse A, Ware M, Bourgault P, et al. | 2016 Feb|
- As if one pain problem was not enough: prevalence and patterns of coexisting chronic pain conditions and their impace on treatment outcomes | Page M, Fortier M, Ware M, Choiniere M | 2017 Dec|
- Development and Implementation of a Registry of Patients Attending Multidisciplinary Pain Treatment Clinics: The Quebec Pain Registry | M.Choinière,M.A.Ware,M.G.Pagé, et al. | 2017 Feb|
- Effectiveness of long-term opioid therapy among chronic non-cancer pain patients attending multidisciplinary pain treatment clinics: A Quebec Pain Registry Study | Saidi H, Page M, Boulanger A, et al. | 2018 Apr|
- Establishment of the Australasian electronic Persistent Pain Outcomes Collaboration | Tardif H, Arnold C, Hayes C, Eagar K | 2016 Aug|
- Expectations predict chronic pain treatment outcome | Cormiera S, Lavigneb G, Choiniere M, et al. | 2016 Feb|
- Implementation of Patient‐Reported Outcomes (PROMs) from specialist pain clinics in England and Wales: Experience from a nationwide study | Price CM, C. de C. Williams A, Smith BH, Bottle A | 2019 Apr|
- Is the Quebec provincial administrative database a valid source for research on chronic non-cancer pain? | Lacasse A, Ware M, Dorais M, et al. | 2015 Jun|
- Normative data for common pain measures in chronic pain clinic populations: closing a gap for clinicians and researchers | Nicholas MK, Costa DS, Blanchard M, Tardif H, Asghari A, Blyth FM | 2019 May|
- Pain registries and similar data collections: A systematic review | Freytag A, Scriba B, Kaiser U, Meissner W | 2016 Dec|
- Pain-related functional interference in patients with chronic neuropathic postsurgical pain: an analysis of registry data | Stamer UM, Ehrler M, Lehmann T, Meissner W, Fletcher D | 2019 Mar|
- Predicting Acute Pain After Surgery: A Multivariate Analysis. Annals of surgery | Baca Q, Marti F, Poblete B, Gaudilliere B, Aghaeepour N, Angst MS | 2019 Jun|
- Predicting treatment outcomes of pain patients attending tertiary multidisciplinary pain treatment centers: A pain trajectory approach | Page M, Escobar M, Ware M, et al. | 2017 Aug|
- Pregabalin for chronic pain: does one medication fit all? | Giladi H, Choinière M, Fitzcharles M, et al. | 2015 May|
- Risk of Opioid Abuse and Biopsychosocial Characteristics Associated With This Risk Among Chronic Pain Patients Attending a Multidisciplinary Pain Treatment Facility | Page M, Saidi H, Ware M, et al. | 2016 Oct|
- The National Pain Audit for specialist pain services in England and Wales 2010–2014 | Price C, de C Williams AC, Smith BH, Bottle A | 2018 Dec|
- The Paediatric electronic Persistent Pain Outcomes Collaboration (PaedePPOC): establishment of a binational system for benchmarking children's persistent pain services | Lord SM, Tardif HP, Kepreotes EA, Blanchard M, Eagar K | 2019 Mar|
Other articles of relevance
- Australian Commission on Safety and Quality in Health Care. Framework for Australian clinical quality registries | 2014 Mar
- Australian Government, Department of Health. Draft National Clinical Quality Registry Strategy: Maximising the Potential of Australian Clinical Quality Registries (2019-2029) | 2019 May
- Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review. PloS one | 2017 Sep
Interim Officers
Chair - Cathy Price
Secretary - Ruth Zaslansky
Treasurer: Gary Macfarlane
Interim Committee Members (with special interests)
Pain in Children - Susie Lord
Perioperative Pain - Winifried Meissner
Special Interest (TBD) - Sean Mackey
Chronic Pain - Manon Choiniere
Orofacial Pain - Joanna Zakrzewska
Developing countries - TBD
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