2020 Global Year Webinar

Pain Prevention Through the Lived Experience Lens

Presented on Thursday 26 March 2020 at 15:00 EDT/ 20:00 CET

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Visit our Resources for Living with Pain page here for more information.

Download the related infographic.  

Presenters:

Katherine Dib, Patient Engagement Coordinator at Solutions for Kids in Pain (SKIP) (Canada)

Katherine Dib has lived with chronic pain since the age of 16. She was a paediatric pain patient at the IWK Health Centre in Halifax, Nova Scotia and is now an adult pain patient at the QE2 Health Sciences Centre in Halifax. She has turned her experience with pain into a force for change. She was a ComfortAbility mentor at the IWK Pain Clinic, sharing her advice on implementing CBT strategies to patients of the clinic. Her passion for helping the pain community led her to research initiatives. She is a patient partner on Dr. Katie Birnie's Partnering for Pain project, a Research Consultant for Dalhousie University's Anesthesia Department and the Patient Engagement Coordinator for Dr. Christine Chamber's Solutions for Kids in Pain network. She advocates for patient engagement in research and believes including patient perspectives will ultimately lead to better pain management.    

Michael Falcon, OTD, OTR/L, MHA, BS, Occupational Therapist, Consultant (United States)

Michael simultaneously received his Doctorate degree in Occupational Therapy, along with a Master’s degree in Healthcare Administration, from Pacific University. He currently works with pediatrics in the school setting and holds a seat on the executive board in the Occupational Therapy Association of Oregon (OTAO), currently serving on the Legislative Committee, Website Committee and Continuing Ed. Subcommittee.
Michael has a passion for international OT and program development. His previous work includes program development for children with socialization deficits in Ecuador, trainings to local medical communities in Ibarra, Ecuador, and humanitarian work in Haiti.
His most recent projects include training Occupational Therapy students in Haiti and consulting with local Oregon school districts in developing curriculum around Opioids, Pain and Self-Care. Michael has presented at conferences such as AOTA 2016 in Chicago, WFOT 2018 in Cape Town, South Africa, OTAO 2019 in Lincoln City, Oregon and Oregon Pain Summit 2020, in Lebanon, Oregon.

Keith Meldrum, A Path Forward (Canada)

Keith has lived with persistent neuropathic pain for over 30 years due to a near fatal motor vehicle accident. For nearly 20 years his experiences with the health care system were often dismissive, challenging, and ineffective until he was referred to a pain clinic that validated his pain and started to work with him to address his complete pain experience, including receiving an implanted spinal cord stimulator in 2005. Based on his experiences, Keith has been an advocate for people living with pain and is dedicated to raising awareness, reducing stigma, and helping others better under the complexities of persistent pain. His efforts are focused on integrating the lived experience as a foundational component of the understanding, management, research, and education of pain as best informed through the biopsychosocial framework. Keith presents locally, nationally, and internationally, shares his experiences though his Facebook blog A Path Forward and is a founding member of the International Association for the Study of Pain’s Global Alliance of Pain Patient Advocates Task Force.

Keith is a civil engineer technologist living in Kelowna, British Columbia, Canada with his wife Barb, his son Chris, and Parker, their Australian Labradoodle.

Mary Wing, Grad/Dip Chronic Condition Management. Patient Educator/Advocate, Adelaide Pain Support Network (Australia)

Mary developed chronic neuropathic pain in 2004 following spinal surgery. The following 2.5 years were quite dark, with no explanation being offered as to why she had pain 24/7 and it was not improving at all. In 2007, Mary enrolled at Flinders University to study chronic condition management as a distraction from the ongoing pain. She also undertook a 6 week course in chronic condition self-management, which was of great benefit. A specialist pain psychologist assisted with understanding and relaxation techniques, which in turn helped manage the fear that accompanies this type of pain.

Mary has been a consumer representative on the Statewide Pain Strategy Steering and Implementation committees in South Australia, a Consumer Advisory Council member at the Adelaide Primary Health Network and is currently a consumer representative on the Consumer Advisory Group for Painaustralia. 

In 2016, Mary was asked if she would like to volunteer to set up a support group for people with chronic pain. The first group began in 2017, followed by a second group in 2018, and a third in 2019. They are spread out across the city and suburbs to provide access for as many as possible. The groups are educational as well as providing peer support for those in need. We have 5 trained facilitators and the groups are funded by the Adelaide Primary Health Network.

Currently, Mary is serving on the Presidential Task Force for the Global Alliance of Pain Patient Advocates (GAPPA) for the International Association for the Study of Pain (IASP).

Moderator:

Joletta Belton, MSc, The Endless Possibilities Initiative and Retrain Pain Foundation (USA)

Joletta Belton is a nature lover, bibliophile, and storyteller. She makes sense of her pain through science and stories on her blog, MyCuppaJo.com, and is co-founder of the Endless Possibilities Initiative, a nonprofit organization with a mission of empowering people living with pain to live well. Joletta is also an advocate for advancing the integration of the lived experience into the study, research, and treatment of pain, which led to her position as co-chair of the IASP Global Alliance of Pain Patient Advocates (GAPPA) presidential task force. She is an author, with two book chapters published in 2019, including in the second volume of Meanings of Pain, and is the first Patient and Public Partnerships Editor for the Journal of Orthopaedic and Sports Physical Therapy.