Patient Resources

Note: IASP does not offer patient referrals. If you are within the US, please contact the patient advocacy group, the American Pain Foundation, at info@painfoundation.org. If you are outside the US, we encourage you to contact an IASP Chapter in or near your country.

American Chronic Pain Association
The mission of the ACPA is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain, and to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
www.theacpa.org

American Pain Foundation
Founded in 1997, the American Pain Foundation is an independent nonprofit organization serving people with pain through information, advocacy, and support. Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
www.painfoundation.org

Arthritis Foundation
The Arthritis Foundation helps people take control of arthritis by providing public health education, pursuing public policy and legislation, and conducting evidence-based programs to improve the quality of life for those living with arthritis.
www.arthritis.org

Ehlers-Danlos National Foundation (EDNF)
Established in 1985 by Founder Nancy Hanna Rogowski, the Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos syndrome.
www.ednf.org

Endometriosis New Zealand
Endometriosis New Zealand is New Zealand's national endometriosis organisation and has affiliated support groups throughout the country. They provide unique and professional services and programmes to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
www.nzendo.co.nz

Fibrocentre.ca
Fibrocentre is committed to being Canada’s leading source for reliable, up-to-date information on fibromyalgia. People living with fibromyalgia, as well as their families and friends, can come to access useful tools and expert resources to help them understand and manage the many symptoms associated with this chronic pain condition.
www.fibrocentre.ca

Interstitial Cystitis Association
The Interstitial Cystitis Association (ICA) is committed to finding more effective treatments and a cure for interstitial cystitis. The ICA promotes and funds research, educates the medical community and public, advocates for IC patients, healthcare providers and researchers, and offers support for IC patients and their families.
www.ichelp.org

The Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
www.leukemia-lymphoma.org

National Fibromyalgia Association
The National Fibromyalgia Association is a 501(c) 3 nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.
www.fmaware.org

National Organization for Rare Disorders
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. It is a non-profit, voluntary health agency that exists to serve rare-disease patients and their families.
www.rarediseases.org

Partners Against Pain
Developed by Purdue Pharma, Partners Against Pain is an advocacy website which offers numerous resources for patients and caregivers, including pain assessment and tracking tools. There are also resources available for healthcare professionals.
www.partnersagainstpain.com

Patient Advocate Foundation
The Patient Advocate Foundation aims to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.
www.patientadvocate.org

Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy
P.A.N.D.O.R.A. aims to assist patients with Neuroendocrineimmune Disorders, such as Chronica Fatigue Syndrome and Fibromyalgia, and their families in leading productive and fulfilling lives.
www.pandoranet.info

Reflex Sympathetic Dystrophy Syndrome Association
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) was founded in 1984 to promote public and professional awareness of Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD).
www.rsds.org

Sickle Cell Disease Association of America
The SCDAA mission is to advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.
www.sicklecelldisease.org